DiscussHAE -- HAE Discussion Group

 

About DiscussHAE
English (USA)

Welcome to our private email support group for HAE patients, family members, and care givers. This email group provides an open forum for information sharing, emotional support, and frank discussions on all issues facing the HAE patient community.

Neither physicians nor representatives of pharmaceutical companies, research firms, marketing companies, or investment firms are allowed to join this group. Accordingly, any attempt to subscribe by someone other than a patient, family member, or care giver will be considered a breach of privacy and unapproved disclosure of personally identifiable information. Our list coordinators independently verify that new members are indeed HAE patients, and we will take aggressive legal action against anyone who violates our "patients only" policy.

If you have any comments, questions or problems you may contact Listserv Moderator, Jenny Barnes - jenbainbarnes@gmail.com or HAE Association President, Anthony Castaldo – ajaycas@yahoo.com

To see the collection of prior postings to the list, visit the DiscussHAE Archives. (The current archive is only available to the list members.)

Using DiscussHAE
To post a message to all the list members, send email to discusshae@listserve.com.

You can subscribe to the list, or change your existing subscription, in the sections below.

Subscribing to DiscussHAE

Subscribe to DiscussHAE by filling out the following form. This is a closed list, which means your subscription will be held for approval. You will be notified of the list moderator's decision by email. This is also a hidden list, which means that the list of members is available only to the list administrator.

    Your email address:  
    Your name (optional):  
    You may enter a privacy password below. This provides only mild security, but should prevent others from messing with your subscription. Do not use a valuable password as it will occasionally be emailed back to you in cleartext.

    If you choose not to enter a password, one will be automatically generated for you, and it will be sent to you once you've confirmed your subscription. You can always request a mail-back of your password when you edit your personal options.

    Pick a password:  
    Reenter password to confirm:  
    Which language do you prefer to display your messages? English (USA)  
    Would you like to receive list mail batched in a daily digest? No Yes

DiscussHAE Subscribers
(The subscribers list is only available to the list administrator.)

Enter your admin address and password to visit the subscribers list:

Admin address: Password:   

To unsubscribe from DiscussHAE, get a password reminder, or change your subscription options enter your subscription email address:

If you leave the field blank, you will be prompted for your email address


DiscussHAE list run by jennybarnes at haea.org
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